FAQ

What is Ehlers-Danlos Syndrome?

For a simple and “layman’s term” explanation of EDS > https://madnessinthemethod.com/ehlers-danlos-syndrome/

What are the most common EDS symptoms?

  • Chronic Pain
  • Subluxations/Dislocations
  • Joint Hypermobility
  • Degenerative Joint Disease (Osteoarthritis)
  • Stretchy Skin/Soft Velvety Skin
  • TMJ (Temporomandibular Joint Syndrome)
  • Poor Healing/Bruise Easy/Atrophic Scarring
  • Gastrointestinal Issues (ie: reflux)
  • Dysautonomia/POTS (Postural Orthostatic Tachycardia Syndrome)
  • Muscle Spasms (Fasisculations)
  • Flat Feet
  • Tinnitus
  • Raynauds

NB: These are not the only symptoms associated with Ehlers-Danlos Syndrome. Each individual will have symptoms unique to their own type of EDS. This list is just some of the most common ones that are seen with Ehlers. If you would like to know more about symptoms and/or the other types of EDS such as; vEDS (vascular), cvEDS (cardiac-valvular), etc – please visit > https://www.ehlers-danlos.com/eds-types/ for further information.

How is EDS inherited?

There are 2 known inheritance patterns for the EDS syndromes > Autosomal Dominant and Autosomal Recessive. In Autosomal Dominant disease there is only 1 mutated gene passed down from one parent. In Autosomal Recessive disease there are 2 mutated genes passed down from each of the parents. Depending on the EDS subtype that is inherited [?] will determine if it is Autosomal Dominant or Autosomal Recessive?

Is EDS & JHS (joint hypermobility syndrome) the same thing?

No. JHS (*HSD) is a condition that features joints that easily move beyond the normal range – ie: double-jointed. JHS isn’t caused from an underlying disease, and often causes no symptoms and/or requires no treatment. EDS is an inherited condition (genetic defect in the collagen) that causes many different symptoms throughout the body which requires ongoing treatment. *HSD (hypermobility spectrum disorders) is superseding the JHS medical term. For a more in-depth explanation please visit > https://www.ehlers-danlos.com/what-is-hsd/

Can EDS be cured?

No. There is no cure for Ehlers-Danlos Syndrome, but treatment can help manage the symptoms and prevent further complications.

What is the prognosis with EDS?

This depends on the type of EDS and the individual. Life expectancy can be shortened with the vEDS (vascular) subtype due to the possibility of organ/vessel rupture, but life expectancy is usually not affected in the other EDS types.

Why is EDS associated with a zebra?

Fun fact: A goup of Zebras is called a dazzle! 🤩 There are 2 reasons why you will always see and/or hear about a zebra when it comes to Ehlers Danlos Syndrome > 1) because when you see a zebra, you know it’s a zebra, but no 2 zebras have identical stripes – just as no 2 individuals with EDS will have identical symptoms, identical types or identical experiences. 2) >

Will there be anymore FAQ added?

Yes. I will continue to keep adding them as more frequent questions pop up 🙂

Hugs / Peace Out! Essie ❣