Aquagenic Urticaria

Aquagenic Urticaria: A rare and incurable condition in which urticaria (hives) develops after the skin comes in contact with water, regardless of the temperature.

In a nutshell – an allergy to water – and my new diagnosis ๐Ÿคช

Is it an actual thing? Apparently so!

Is it something I’ve had all of my life? Nope!

Is it something that would normally appear in your late 40’s? Nope!

This newly acquired water allergy only started about 2’ish years ago (give or take) and literally appeared from no-where ๐Ÿ˜ฒ

Nothing out of the ordinary was going on in my life at the time, well apart from “normal” day-to-day crap, but as I was drying myself off after having a shower one day, I looked over to the mirror and nearly had a heart attack!

My arms, chest, stomach, back, shoulders, and hips were covered in weird-looking red/pink splotches, and as I standing there, more of them were appearing.


I raced downstairs to show my hubby, who was just as shocked as I was, and while I continued on having a meltdown ๐Ÿ˜œ he began taking photos of them.

Within an hour though, and just like magic, all of them had disappeared.

Double WTF?

We had no idea what caused it and just put it down to a (one-off) reaction to the soap or shampoo – even though I’d been using the same products for years.

Unfortunately, it wasn’t a one-off though, and every time I showered – it happened again ๐Ÿคจ

We tried a process of elimination with different water temps, different time frames of being in the water, just using soap, using shampoo, using conditioner, and even using no products at all – but we still couldn’t pinpoint what was causing it?

We couldn’t even find anything similar on good ‘ol Dr. Google, so it was off to the doctor to see what he thought?

Now even though we took in plenty of photos, he didn’t seem that interested, and for whatever reason [?] he also didn’t want to send me to a dermatologist. *shrugs shoulders*

BUT, wait for it!

Here comes a plot twist …

I’d gone to the hospital emergency department, for an unrelated issue, and while I was there they asked me if there was anything else going on that they should know about?

I mentioned the splotches, and we went through the photos on my phone, and that is when it got a whole lot more interesting!

Two extra doctors had come in so they could have a look as well, and with each of the splotch body locations in the photos, they checked that area of my body for comparison.

All of them became fascinated as they’d never seen anything like it before, and that’s when I found out the splotches were actually leaving a weird dry skin lesion thingy-me-jig behind – that I had no idea about.

Mind-blown!!! ๐Ÿคฏ

They knew it was some kind of discoid rash, but apart from that, they had no idea?

They wanted to know why it hadn’t been checked by someone yet [?] and after explaining the GP’s attitude to it – well, let’s just say that they weren’t impressed and sent him a letter.

I finally went to see a dermatologist/pathologist who, after going through MANY splotch/lesion photos, and asking me 101 questions, diagnosed me with Aquagenic Urticaria.

Unfortunately, there isn’t a cure for this condition and the only treatments available are taking antihistamines before having a shower, and/or having light therapy.


So there you have it, folks! Another rare and mysterious medical condition to add to my already growing list. How bloody lucky am I – not! ๐Ÿ˜†

Does it come as a surprise to me or anybody who knows me? Nah not really.

For whatever reason [?] having and/or getting rare, weird and mysterious conditions is a VERY NORMAL thing for me, and I can confidently say, without a shadow of a doubt, that when it comes to my DNA/genetics – there’s a whole lot of fuck-ups ๐Ÿ˜‚

Of course, it would be awesome to know why it’s all of a sudden started so late in my life [?] but at this stage, it’s looking like it’s going to remain a mystery as this condition is still unknown – even to the experts!

Hugs / Peace Out! Essie โฃ

(FYI: having any connection to the Ehlers is unknown at this stage?)

Photos added as requested 9/9/19 >

Hives (urticaria) disappear within 60 minutes.
Lesions disappear after approx 3-4 weeks.